Re: Wanted: Special Needs Mommy Friends

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I get it. And I agree, there’s entirely too little support out there for mommies (and daddies!) of kiddos with special needs.
I know because I’m one of them, too. ;)

My youngest son is adopted. I share that right off the bat becausefranklywe didn’t know whether his special needs were due to the neglect and abuse he experienced before the adoption or due to genetics. Unfortunately, we now know it’s a combination of both.

In (very) short, my son struggles with at least one congential amino acid metabolic disorder. (His body can’t metabolize protein of any kind. If he ingests too much, it leads to irreversible mental retardation. So he’s on a strictly managed diet of 15grams of protein per day. He’s also a little person (with genetic markers for about 6 different types of skeletal dysplasia). He has a very low IQ and even now at 8 years old struggles to say intelligible words and more than 2 or 3 words at a time. He’s legally blind and has recently lost the ability to toilet independently. (He can’t understand his bodies urges to go. So I have him on a set schedule for when to visit the restroom.)

I’ve had family come right out and say they’re too uncomfortable to be around him. I’ve had (several!) doctors say they simply can’t help us anymore. I’ve had (many!) moments when I felt completely and utterly alone. That’s why I’ve determined to create a better support system and future for our family, myself included. (Hey, if we’re not around and healthy ourselves, then who will take care of and love our kids, right?) Personally, I’m trying to lean on my faith more and more each day because I know I can’t do this alone. (If you’re curious, please do check out my blog in my siggy below! I’d love to connect on FB, too!)

I’m excited and simultaneously relieved to “e-meet” other mommies who are also walking the special needs path with their kiddos. It can be an incredibly isolating and lonely place to be. Here’s to finding new hands to hold along the way!  :D

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